Places to learn about ME & direct #doctorsaredickheads to!
Hummingbirds Foundation for ME – one of *the* best resources. I also bought the book “Caring for an ME Patient” which is amazing too.
If you need something to explain to family members/friends what ME is, or you need to force drs to take it seriously, this is THE thing you want to buy!
Paradigm Change – exercise intolerance, quotes from ME experts
Paradigm Change – ME & CFS exercise intolerance (peer-reviewed articles from medical journals)
How To Get On – Potential dangers of exercise & activity for people with ME (GET dangers, explanation of PENE/PEM)
ME-pedia Symptoms list
ME Association – what is ME?
Paradigm Change – An introduction to ME
Solve ME/CFS – 5 myths of ME
Stat News – How bad science misled CFS patients (PACE trial, GET)
Centres for disease & control – myalgic encephalomyelitis (detailed list of symptoms)
Dally is disabled – PENE/PEM
The national academies of sciences engineering medicine (diagnosis criteria)
ME-pedia (great resource with lots of info)
ME Action UK (info regarding symptoms, diagnosis)
ME Association – link to Workwell Foundation opposition to Graded Exercise Therapy (can be given to drs to decline GET; pic below also)