assistance dog, craniocervical instability, myalgic encephalomyelitis

PEM crash

I’m experiencing such PEM rn 🙄

I had my iMSK appt last Tuesday, on Thursday we had a picnic in my electric wheelchair, then on Saturday we went to Lyle’s parent’s for a few hours…so now I’m in a mega crash.

My exhaustion is off the charts. In my most well moments I can barely watch tv or read. Neck pain is awful. Seizures are bad. But mostly it’s the crippling exhaustion.

The adventures were fun, the appt was awful, but the PEM/PENE is the worst!!

(Bandit is my assistance dog in training, & yes he is extremely adorable 😉)

But these last two days? This is my reality…

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