I’m experiencing such PEM rn 🙄
I had my iMSK appt last Tuesday, on Thursday we had a picnic in my electric wheelchair, then on Saturday we went to Lyle’s parent’s for a few hours…so now I’m in a mega crash.
My exhaustion is off the charts. In my most well moments I can barely watch tv or read. Neck pain is awful. Seizures are bad. But mostly it’s the crippling exhaustion.
The adventures were fun, the appt was awful, but the PEM/PENE is the worst!!
(Bandit is my assistance dog in training, & yes he is extremely adorable 😉)
But these last two days? This is my reality…