After 5 consecutive rest days (by which I mean confined to bed 99.0% of the time), & 8 out of the last 9 days being rest days too, today I felt the most human have in ages.
And by that, I mean I felt I had the energy to – go upstairs to the bathroom, have a shower, put toys in a new mouse cage (from bed) all within 2hrs after waking; then after many hours in bed and a nap, I was well enough to spend some time in the pet room at night, & say hi to my bugz.
This is huge. I’ve done these things recently of course (there’s not really any escaping needing to go to tree bathroom), but I knew I was forcing myself & depleting what little health I have. Today I felt like I could do them. BIG difference. I even brushed my teeth at the sink, rather than my partner having to bring everything to bed!
My pain has been bad today though. I’m going through a bad spot with my fucked up neck, which means daily severe headaches & almost back-to-back migraines 🙄
Add to that I woke up from my nap today with my shoulder out, & it hasn’t been fun.
Here’s a before & after my partner got it back in!
But! A ‘good’ day for energy is worth celebrating 🙂
To know that, despite how little I was doing these past 12+ months, I was still pushing my body way too far & making myself much sicker is, unsurprisingly, eye opening.
Yes, pretty much all of my life is spent indoors & in bed now, but to have any semblance – any scraps of ability – & a reduction of symptoms makes it worth it. I can’t say how good it felt to make it up to the bathroom with only a few seizures today, & actually getting to shower (yes with seizures, dizziness, palpitations, pain – but no passing out, no air hunger, no crying because the symptoms are so bad) was incredible.
Happy fucking times 😂